Monday, February 28, 2011

wino: colby red

 In catching up on my blogs this weekend I came across Meagan's most recent post, and I was so excited about this that I sent Mr. Gherkin out to pick up a bottle immediately. 

via

I certainly don't claim to be a wine connoisseur, but I would drink this again especially at less than $10 a bottle and since it benefits the American Heart Association.  You can hear more about Colby's (what a sweet and strong little boy) story here

Here's to Colby and every other heart baby/child/teenager/adult. 

Friday, February 25, 2011

everywhere a moo moo.

 In honor of Go Texan Day and the kick off to the Houston Livestock Show and Rodeo and because he peed on his first outfit of the day...



marital status?

We got a kick out of P's medical summary at our last TCH visit.
(Probably only two delirious, sleep-deprived, first time parents would find this as funny as we did and then add their own commentary ... we get that.)

Happy Weekend! We're off to meet friends for lunch (on a patio to enjoy this gorgeous sunshine).


Thursday, February 24, 2011

his favorite place.


Who would have thought he would love that changing table pad this much?

Seriously, he's in love with his changing pad.
Nope, not the table.  Just the pad itself. He'll cry if we try to pick him up. When he's fussy and our attempts to soothe him fail, the changing pad works almost every time, or when we need to use two hands we can buy ourselves at least 10 minutes if we utilize that changing pad. See for yourself.

chilling in my crib... on my changing pad.
You would think his mattress has pins in it.
And now in mom's bed (still on the changing table) talking
with her while she gets ready. 
After running some errands and a jewelry party on Wednesday evening, I came home to find P on the coffee table (yep, you guessed it... on his changing pad) with his daddy on the couch talking to him.  Dad says he just wouldn't calm down until he was on his changing pad. Hate that I forgot to grab my camera. 


Monday, February 21, 2011

making memories!

Preston met his other great grandmother this weekend. It was a sweet moment to witness and we enjoyed our visit. 
Uncle Michael, this is for you.
Wish you were here... come visit soon.

And while we were enjoying some patio time Saturday
evening we caught P's angry man face (our fave) on camera. 


Sunday, February 20, 2011

love this.


I borrowed this from Olivia. I love it. I thought about Preston when I read it. I thought about the journey I went through this past year. It reminded me of how I wrestled with God and then slowly but surely embraced Him and His will for our lives.  I was struggling a bit (stinkin' hormones) and was feeling a little overwhelmed the day I read this on Olivia's blog... I immediately felt better and more peaceful after reading. So I decided to pass it along.

via

My Child,
 You may not know me,
but I know everything about you.
Psalm 139:1
I know when you sit down and when you rise up. 
Psalm 139:2
I am familiar with all your ways. 
Psalm 139:3
Even the very hairs on your head are numbered. 
Matthew 10:29-31
For you were made in my image. 
Genesis 1:27
In me you live and move and have your being.
Acts 17:28
For you are my offspring. 
Acts 17:28
I knew you even before you were conceived. 
Jeremiah 1:4-5
I chose you when I planned creation. 
Ephesians 1:11-12
You were not a mistake,
for all your days are written in my book. 

Psalm 139:15-16
I determined the exact time of your birth
and where you would live. 

Acts 17:26
You are fearfully and wonderfully made. 
Psalm 139:14
I knit you together in your mother's womb. 
Psalm 139:13
And brought you forth on the day you were born. 
Psalm 71:6
I have been misrepresented
by those who don't know me.

John 8:41-44
I am not distant and angry,
but am the complete expression of love. 

1 John 4:16
And it is my desire to lavish my love on you. 
1 John 3:1
Simply because you are my child
and I am your Father. 

1 John 3:1
I offer you more than your earthly father ever could. 
Matthew 7:11
For I am the perfect father. 
Matthew 5:48
Every good gift that you receive comes from my hand. 
James 1:17
For I am your provider and I meet all your needs. 
Matthew 6:31-33
My plan for your future has always been filled with hope. 
Jeremiah 29:11
Because I love you with an everlasting love. 
Jeremiah 31:3
My thoughts toward you are countless
as the sand on the seashore.

Psalms 139:17-18
And I rejoice over you with singing. 
Zephaniah 3:17
I will never stop doing good to you. 
Jeremiah 32:40
For you are my treasured possession. 
Exodus 19:5
I desire to establish you
with all my heart and all my soul. 

Jeremiah 32:41
And I want to show you great and marvelous things. 
Jeremiah 33:3
If you seek me with all your heart,
you will find me. 

Deuteronomy 4:29
Delight in me and I will give you
the desires of your heart. 

Psalm 37:4
For it is I who gave you those desires. 
Philippians 2:13
I am able to do more for you
than you could possibly imagine. 

Ephesians 3:20
For I am your greatest encourager. 
2 Thessalonians 2:16-17
I am also the Father who comforts you
in all your troubles. 

2 Corinthians 1:3-4
When you are brokenhearted,
I am close to you. 

Psalm 34:18
As a shepherd carries a lamb,
I have carried you close to my heart. 

Isaiah 40:11
One day I will wipe away
every tear from your eyes. 

Revelation 21:3-4
And I'll take away all the pain
you have suffered on this earth.

Revelation 21:3-4
I am your Father, and I love you
even as I love my son, Jesus.

John 17:23
For in Jesus, my love for you is revealed. 
John 17:26
He is the exact representation of my being. 
Hebrews 1:3
He came to demonstrate that I am for you,
not against you. 

Romans 8:31
And to tell you that I am not counting your sins.
2 Corinthians 5:18-19
Jesus died so that you and I could be reconciled. 
2 Corinthians 5:18-19
His death was the ultimate expression
of my love for you. 

1 John 4:10
I gave up everything I loved
that I might gain your love. 

Romans 8:31-32
If you receive the gift of my son Jesus,
you receive me. 

1 John 2:23
And nothing will ever separate you
from my love again.

Romans 8:38-39
Come home and I'll throw the biggest party
heaven has ever seen.

Luke 15:7
I have always been Father,
and will always be Father.

Ephesians 3:14-15
My question is…
Will you be my child? 

John 1:12-13
I am waiting for you. 
Luke 15:11-32

 Love, God




Friday, February 18, 2011

Craving Spring/Summer



Best facial sunscreen ever. Matte finish. Can easily wear under makeup if desired.  Perfect for days of long sun exposure. Ahhh, the smell of sunscreen... it never gets old.


Bobbi Brown's beach fragrance

Have you smelled this? It makes me dream of pina coladas, Bob Marley, and blue waters.
This does too.

y'all come back ya hear?

Time to put the darker nail polish away. I think I want to try OPI's new Texas line especially the Y'all Come Back Ya Hear? or the Guy Meets Gal-veston.
guy meets gal-veston


all images via google.com

Thursday, February 17, 2011

There's no place like home: one month

Can you believe it's already been a month since Sweet P's homecoming? One full month since I sat with him in his nursery for the very first time. It was definitely one of the happiest days of my life.  I'm glad Mr. Gherkin pushed me to finish that nursery even when I often wondered whether I would be able to hold my baby in it.


my sweet P dressed to come home
his first car ride
One month later and this guy is definitely keeping me on my toes. He prefers to be held. Ok, who am I kidding, he will not sleep during the day unless he's in my arms or we're on a walk with him in his stroller. Don't ask how many times we've circled the driveway with his stroller. :-) He's definitely a momma's boy.

We're off to buy a swing this weekend to see if that does the trick especially since Breann and Logan swear by it.  Not sure what I was thinking when I said we didn't need to register for a swing. I said the same thing about a rocker, but the borrowed rocking chair in our bedroom is the only place I can calm him when he's acting like his momma throwing a fit.

His nighttime sleeping routine rocks. He only wakes up once, eats, and then goes right back to sleep. He's even slept for 5 hours straight a few nights. 

I love you this much, mommy.
home exactly one month

He definitely hit a growth spurt yesterday. Growth spurts = one tired mommy. I hope I can keep up with him.

Wednesday, February 16, 2011

How to order onesies...


 Here's the info on how to order these onesies for those who've asked.

A childhood friend sent us these onesies for Preston and she sells them in her shop.

My fave:  all God's grace in this tiny face


This one is actually a shirt: God makes the impossible, possible here i am!

i may be little but i serve a BIG GOD!

How true is this: mommy's answered prayers

For those who are interested in ordering you can check out Polkadots and Pattycakes Bowtique.  Here's the website and then click on Christian apparel. You can also e-mail her at susandmiles (at) yahoo (dot) com. 

 Thanks again for the onesies, Susan. We love them.

Monday, February 14, 2011

And the doctor said...


all is   a-ok.

We headed back to TCH for a follow up with P's cardiologist today, and instead of hearing words like hydrops, heart failure, surgery, and mortality we heard things like better, happy, blessed, and pleased. 

His heart function is still trying to recover from having the defect so long in utero. It is definitely stable and seems to be improving slowly.  They are hopeful that his heart will "remodel" itself and recover from the damage done in utero. We increased his medication but only because he is growing like crazy and not because his heart function is worse. 

She shared with us that she presented Preston's case at a national conference just recently sharing pictures of the actual tunnel and the coronary artery she took during surgery and that the overwhelming response was surprise and shock that he survived to birth. That again brings me back to reality and helps me keep my eye on the big picture here... that this is God's plan and wonderful will for our lives and for Preston's life... and that our prayers were answered.  So thanks again for sending all those prayers up.

She also used that dreaded R word. Reflux. Ugghh. We're told that reflux is very, very common in heart babies, and she's afraid he may have shown some signs of reflux today. We'll wait to talk to his pediatrician about it in a couple of weeks.  The good news is that it doesn't seem to be affecting his feedings or his growth.

So today was a great and fabulous day. Hope yours was too. 

Thanks for our cute onsie, Susan!
It reads "All God's grace in this tiny face."

Happy Valentine's Day

card from here

I'll be spending Valentine's Day with my main men (Gherkin and P) mostly at Texas Children's Hospital for follow-up appointments then dinner at our favorite baby-friendly restaurant.


Friday, February 11, 2011

P's star


P has a star named after him thanks to our sweet friend, Jeanie. Perhaps I've been living under a rock, but I had no idea you could do this. Coolest.thing.ever.


his sweet note and the coordinates of P's star.

Thursday, February 10, 2011

Sunshine

Not sure if it's because I'm desperate for some sunshine, if it's because it reminds me of my special song for P, or both (most likely), but I can't get this house out of my head. Whatever the case, I love it!



found via
House*Tweaking's home 



p.s. I can't wait to design another nursery :)

Wednesday, February 9, 2011

More Preston Lovin' (and CHD Awareness Week)


My heart it a little heavy this week. It's CHD (Congenital Heart Defect) Week. It's to raise awareness for CHD, which occurs in 1 in every 100 babies (that's a lot of babies y'all). I've come across so many blogs (new and old) this week... so many babies with CHD... so many mommies who've lost a baby to CHD. So my heart is heavy.

My heart is heavy but hopeful. Hopeful that more will be done to prevent (if that's possible) CHD, detect CHD, and cure CHD. Hopeful that families affected by CHD will be adequately supported with literature, information, and of course emotional support. Hopeful that God will bless the families affected by CHD far beyond what we can imagine.

My heart is heavy, but thankful. Thankful for modern medicine. Thankful for physicians (and techs) who take their job seriously in detecting and diagnosing CHD. Thankful for the physicians who prepare (if that's fully possible) families for the birth of babies with CHD. Thankful for all the support that's out there for CHD. Thankful for Texas Children's Hospital. Thankful for cardiovascular surgeons who stay on top of their game in fixing the broken hearts that come into this world. Thankful for volunteers that make heart pillows, blankets, and visit heart babies in the hospital. Thankful that I serve a God who's consistent in providing comfort and peace in a time of brokenness, worry, and fear despite our asking why. Thankful that He knows better than we do.

And I'm so thankful and hopeful for this little guy....
lovin' his facial expression here
lovin' his cradle cross that one of my patients gave him

also lovin' his onsie that his friend Jack sent him 
To all those affected by CHD, I'm sending lots of love and a big hug your way. To all those sharing their stories this week and/or posting to raise awareness for CHD, thank you. To Preston, thank you for fighting so that you could fill my life with so much joy.

Ephesians 3:20 

Tuesday, February 8, 2011

West Elm Love (and bargain)



I've eyed this sconce from West Elm for a while now, and when I saw a $9 sales tag on it Sunday (thanks Mr. Gherkin for letting this mommy out of the house for a while) I threw two of them on the check out counter without thinking twice. They now flank the silk dupioni drapes in our master.  West Elm was full of bright and colorful decor. It was refreshing. Now if we could have some warmer weather and sunshine so my paleness can go away I can get some Vitamin D. Sigh.

Monday, February 7, 2011

1 in 100...

... that's how frequently a baby is born with congenital heart disease.


I am passionate about CHD. I'm ready to give back. I came across Tanya's post this morning through Megan's blog and immediately sought Tanya's permission to post on my blog. So here goes...

Did you know...
... that Congenital Heart Defects (CHDs) are the most common birth defect in America, affecting approximately one in one hundred, or 40,000 newborns each year?

... CHDs are responsible for one third of all birth defect-related deaths and sadly 20 percent of children who make it through birth will not survive past their first birthday. 

... that although a child is born every 15 minutes with a CHD, research continues to be grossly under-funded in America. 

... of every dollar the government spends on medical funding, only a fraction of a penny is directed toward congenital heart defect research.

What is a Congenital Heart Defect?  A CHD means a child is born with an abnormally structured heart and/or large vessels. Such hearts may have incomplete or missing parts, may be put together the wrong way, may have holes between chamber partitions or may have narrow or leaky valves or narrow vessels.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I have come to know and follow, in the blogging world, some really great families (especially the mamas) and heart babies.  Some, are no longer here on this earth with us, and some are living very wonderful and fulfilling lives here, even with their bandaged hearts.  I hope to never have to endure what these children and families have and continue to go through, but peacefully realize that if I am ever placed in their shoes, I will have the BEST support group.  These people are courageous, bare-to-the-bone, hopeful, faith-filled, all-loving, raw, emotional, loving, and totally real.  And they make me cry and laugh and hope and dream...sometimes all in the same blog post.

Here are just a few that I follow, and I know there are SO many more out there.
BowenCohen, EwanJoshua, LukeLogan, Annabelle, Laken, David, Ella, Owen,Emma, PrestonRadcliffe, Field, are just to name a few...

I have so much admiration for these children and families and that is what I feel like I'm being called to help.  Why do parents sometimes not find out there child has a CHD until after it's too late?  Why aren't there 'sure' surgeries, since this is the MOST COMMON birth defect in America?  Why isn't this getting the supporting funding it needs to find solutions to such a huge problem?

In honor and memory of all the children living and lost from CHD's, bekima knits' helping hearts will be donating 20% off every sale, now thru everyone's 'Heart Day' - February 14th.

bekima's helping hearts fundraiser will help benefit, The Children's Heart Foundation, whom's goal is to bring health, hope and happiness to children impacted by congenital heart defects, the number one birth defect in the United States. They accomplish this goal by funding the most promising research to advance the diagnosis, treatment and prevention of congenital heart defects.  And also, Bless Her Heart, an organization founded after their daughter, Taryn, unexpectedly passed away from 2 CHDs.  Bless Her Heart is dedicated to promoting congenital heart defect awareness to families at the earliest opportunity possible, and all donations are used to maintain the website and for printing and distribution of CHD awareness pamphlets to various organizations, businesses, and doctors’ offices.

The Children's Heart Foundation is the country’s leading organization solely committed to CHD research funding, and dedicates itself to bringing health, hope and happiness to children and families impacted by a CHD. CHF has funded over $4.1 million of vital, life-saving CHD research since its inception, which includes approximately $400,000 in 2010.

I LOVE the work that both of these foundations have taken on, especially Bless Her Heart for bringing this birth defect into awareness before these children are born.  Before hearing and reading of these families and babies, I would have had no idea that this devasting defect even had a place on this earth.  God has definitely stuck this in front of me for a reason, and this is what is being called to me at the moment, and there may be more in the future.  All in His plan...and I'm sure there will be more and all for a reason.  And what better timing than our unofficial 'Heart Month'!!  If anyone else is interested in more CHD events and fundraisers, check out this site for Congenital Heart Defect Awareness Week, which runs Feb 7-14, 2011.

I pray and hope that we can make a difference, and I know we can!!!  I also have some super special knits that I would love to be able to give both parents that have lost children due to CHD's and also children that are living with their CHD's.  Parents and/or friends and family...please email me and let me know about you and your child, and you will have a special gift from bekima knits at your doorstep soon.  It's just a bit of what I can do to offer some comfort and joy to those most in need.


Feel free to copy and paste to help spread the word!
Shop HERE to help hearts...one hat at a time.

And as always, feel free to donate directly to either/both of these foundations.  I can only imagine the benefits that these donations will bring the future of CHD technologies and awareness.

"For nothing is impossible with God"  ~Luke 1:37